Understanding Challenges of Liver Data Governance for Providing Mobile App-Based Liver Care Services In Developing Countries Like Bangladesh

Md Abu Sayed; Md Abdullah Hossien Molla; Rabiul Hasan; Tasfia Afrin Mim; Md Fazal Karim; Moinul Islam Zaber

doi:10.1007/978-3-032-30549-7_7

Conference Paper2026

Understanding Challenges of Liver Data Governance for Providing Mobile App-Based Liver Care Services In Developing Countries Like Bangladesh

Md Abu Sayed, Md Abdullah Hossien Molla, Rabiul Hasan, Tasfia Afrin Mim, Md Fazal Karim, Moinul Islam Zaber

International Conference on Human-Computer Interaction

In: Human-Centered Design, Operation and Evaluation of Mobile Communications

Springer Nature Switzerland, pp. 120-138, ISBN: 9783032305480

DOI: 10.1007/978-3-032-30549-7_7 URL

Keywords

InteroperabilityCustodiansData governanceHealth careCorporate governanceDeveloping countryHealth InformaticsData accessInformation governanceOpen data

References

1.Nasrin Pervin, Mahani Mokhtar. (2022). The Interpretivist Research Paradigm: A Subjective Notion of a Social Context. International Journal of Academic Research in Progressive Education and Development, 11(2)[10.6007/ijarped/v11-i2/12938]
2.Tuhin Biswas, Sonia Pervin, Md. Imtiaz Alam Tanim, Louis Niessen, Anwar Islam. (2017). Bangladesh policy on prevention and control of non-communicable diseases: a policy analysis. BMC Public Health, 17(1), 582[10.1186/s12889-017-4494-2]
3.Tahmina Begum, Shaan Muberra Khan, Bridgit Adamou, Jannatul Ferdous, Muhammad Masud Parvez, Mohammad Saiful Islam, Feroza Akhter Kumkum, Aminur Rahman, Iqbal Anwar. (2020). Perceptions and experiences with district health information system software to collect and utilize health data in Bangladesh: a qualitative exploratory study. BMC Health Services Research, 20(1), 465[10.1186/s12913-020-05322-2]
4.Md. Rakibul Hoque, Md. Fahami Ahsan Mazmum, Yukun Bao. (2014). e-Health in Bangladesh: Current Status, Challenges, and Future Direction. The International Technology Management Review, 4(2), 87[10.2991/itmr.2014.4.2.3]
5.Sana Z. Khan, Zahraa Shahid, Karin Hedstrom, Annika Andersson. (2012). Hopes and Fears in Implementation of Electronic Health Records in Bangladesh. The Electronic Journal of Information Systems in Developing Countries, 54(1), 1–18[10.1002/j.1681-4835.2012.tb00387.x]
6.Shafiqul Hassan, Mohsin Dhali, Fazluz Zaman, Muhammad Tanveer. (2021). Big data and predictive analytics in healthcare in Bangladesh: regulatory challenges. Heliyon, 7(6), e07179[10.1016/j.heliyon.2021.e07179]
7.Shahinul Alam, Shah Mohammad Fahim, Muhammad Abdul Baker Chowdhury, Md. Zakiul Hassan, Golam Azam, Golam Mustafa, Mainul Ahsan, Nooruddin Ahmad. (2018). Prevalence and risk factors of non‐alcoholic fatty liver disease in Bangladesh. JGH Open, 2(2), 39–46[10.1002/jgh3.12044]
8.AbulKalam Azad, MuhammadAbdul Hannan Khan, Valeriade Oliveira Cruz. (2019). Bangladesh’s digital health journey: reflections on a decade of quiet revolution. WHO South-East Asia Journal of Public Health, 8(2), 71[10.4103/2224-3151.264849]
9.Shahinul Alam. (2013). Nonalcoholic steatohepatitis in nonalcoholic fatty liver disease patients of Bangladesh. World Journal of Hepatology, 5(5), 281[10.4254/wjh.v5.i5.281]
10.Sheik Mohammed Shariful Islam, Reshman Tabassum. (2015). Implementation of information and communication technologies for health in Bangladesh. Bulletin of the World Health Organization, 93(11), 806–809[10.2471/blt.15.153684]
11.M Masudur Rahman, Md Golam Kibria, Hasina Begum, Mazhar Haque, Nigar Sultana, Mahfuza Akhter, A H M Rowshon, Faruqe Ahmed, Mahmud Hasan. (2020). Prevalence, risk factors and metabolic profile of the non-obese and obese non-alcoholic fatty liver disease in a rural community of South Asia. BMJ Open Gastroenterology, 7(1), e000535[10.1136/bmjgast-2020-000535]
12.Salimur Rahman, Mohammad Faroque Ahmed, Mohammad Jamshed Alam, Mohammad Izazul Hoque, Chitta Ranjan Debnath. (2013). Distribution of Liver Disease in Bangladesh: A Cross-country Study. Euroasian Journal of Hepato-Gastroenterology, 4(1), 25–30[10.5005/jp-journals-10018-1092]
13.Md. Ariful Islam, Md. Antonin Islam, Md. Amzad Hossain Jacky, Md. Al-Amin, Md. Saef Ullah Miah, Md. Muhidul Islam Khan, Md. Iqbal Hossain. (2023). Distributed Ledger Technology Based Integrated Healthcare Solution for Bangladesh. IEEE Access, 11, 51527–51556[10.1109/access.2023.3279724]
14.Mahnuma Rahman Rinty, Uzzal Kumar Prodhan, Md. Mijanur Rahman. (2021). A prospective interoperable distributed e-Health system with loose coupling in improving healthcare services for developing countries. Array, 13, 100114[10.1016/j.array.2021.100114]
15.Dipika Shankar Bhattacharyya, Goutam Kumar Dutta, Iffat Nowrin, Sohana Shafique, Md. Zahidul Islam, B. M. Riazul Islam, Iqbal Anwar. (2021). Implementing a digital human resources management tool in the government health sector in Bangladesh: a policy content analysis. BMC Health Services Research, 21(1), 1346[10.1186/s12913-021-07304-4]
16.Md Ashraful Alam, Md Refat Uz Zaman Sajib, Fariya Rahman, Saraban Ether, Molly Hanson, Abu Sayeed, Ema Akter, Nowrin Nusrat, Tanjeena Tahrin Islam, Sahar Raza, K M Tanvir, Mohammod Jobayer Chisti, Qazi Sadeq-ur Rahman, Akm Hossain, MA Layek, Asaduz Zaman, Juwel Rana, Syed Moshfiqur Rahman, Shams El Arifeen, Ahmed Ehsanur Rahman, Anisuddin Ahmed. (2024). Implications of Big Data Analytics, AI, Machine Learning, and Deep Learning in the Health Care System of Bangladesh: Scoping Review. Journal of Medical Internet Research, 26, e54710[10.2196/54710]
17.Sudipta Kumer Mukherjee, Daniel J. Olivieri, Sarosh Irfan Madhani, Christopher M. Bonfield, Edith Mbabazi, D. M. Arman, Michael C. Dewan, Sheikh Muhammad Ekramullah. (2022). EMR adoption in Dhaka, Bangladesh: a template to index pediatric central nervous system tumor care and a review of preliminary neuro-oncologic observations. Child s Nervous System, 38(8), 1497–1504[10.1007/s00381-022-05450-6]
18.Shafiqur Rahman, Aminul Islam. (2024). Healthcare Information Systems (HIS): Implementation Challenges in Developing Countries. Bangladesh Journal of Medical Science, 23(2), 314–326[10.3329/bjms.v23i2.72094]
19.Amen Faridoon, M. Tahar Kechadi. (2024). Healthcare Data Governance, Privacy, and Security - A Conceptual Framework. Lecture notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering, 261–271[10.1007/978-3-031-72524-1_19]
20.Mohammad Zahedul Alam, Wang Hu, Aslam Uddin. (2020). DIGITAL TRANSFORMATION IN HEALTHCARE SERVICES SECTOR OF BANGLADESH: CURRENT STATUS, CHALLENGES AND FUTURE DIRECTION. Journal on Innovation and Sustainability RISUS, 11(1), 30–38[10.23925/2179-3565.2020v11i1p30-38]
21.Shahinul Alam. (2017). Past, Present, and Future of Hepatitis B and Fatty Liver in Bangladesh. Gastroenterology & Hepatology Open Access, 6(3)[10.15406/ghoa.2017.06.00197]
22.Eka Wilda Faida, Stefanus Supriyanto, Setya Haksama, Hosizah Markam, Amir Ali. (2022). The Acceptance and Use of Electronic Medical Records in Developing Countries within the Unified Theory of Acceptance and Use of Technology Framework. Open Access Macedonian Journal of Medical Sciences, 10(E), 326–336[10.3889/oamjms.2022.8409]
23.Shah Mohammad Fahim, Muhammad Abdul Baker Chowdhury, Shahinul Alam. (2020). Non-alcoholic fatty liver disease (NAFLD) among underweight adults. Clinical Nutrition ESPEN, 38, 80–85[10.1016/j.clnesp.2020.06.002]
24.Mohammad Kamrul Alam Sikder, Abu Nowshed Chy, Md. Hanif Seddiqui. (2013). Electronic health record system for human disease prediction and healthcare improvement in Bangladesh. , 1–5[10.1109/iciev.2013.6572672]
25.Shafiqur Rahman, Aminul Islam. (2024). Success Factors in the Implementation of Healthcare Information Systems (HIS) among Developing Countries. Bangladesh Journal of Medical Science, 23(4), 957–966[10.3329/bjms.v23i4.76505]
26.Mst. Shikha Khatun, Anikah Hossain, Sumaiya Akter, Md Abu Sayed, Ashraful Islam, M. Ashraful Amin. (2025). Designing HepCare App: Promoting Hepatitis Prevention and Awareness in Bangladesh. Lecture notes in computer science, 300–318[10.1007/978-3-031-93061-4_19]
27.Nuha Najibah, Nahin Fatima, Md Alimuzzaman Farsi, Md Abu Sayed, Ashraful Islam, M. Ashraful Amin, Md. Fazal Karim. (2025). Designing a Mobile App for a National Liver Cancer Registry in Bangladesh. Lecture notes in computer science, 329–346[10.1007/978-3-031-93061-4_21]
28.Jannatul Efte Ekra, Pulak Kanti Palit, Mohammed Mehadi Hassan Chowdhury, Israt Jahan Sourna, Sanzida Islam, Farhana Arefin, Md. Asaduz Zaman, Joyonti Datta, Nafsoon Rahman, Adiba Anjum, Subodh Kumar Sarkar, Ashekul Islam. (2025). Metabolic syndrome components as determinants of NAFLD progression in Bangladesh: a cross-sectional study. Egyptian Liver Journal, 15(1)[10.1186/s43066-025-00457-5]
29.Monzur Morshed Patwary, Naimul Islam. (2025). Identifying Gaps in Mobile Data Collection by Frontline Health Workers in Bangladesh. Annals of Global Health, 91(1), 71[10.5334/aogh.4868]

← All publications

References

1.Nasrin Pervin, Mahani Mokhtar. (2022). The Interpretivist Research Paradigm: A Subjective Notion of a Social Context. International Journal of Academic Research in Progressive Education and Development, 11(2)[10.6007/ijarped/v11-i2/12938]

2.Tuhin Biswas, Sonia Pervin, Md. Imtiaz Alam Tanim, Louis Niessen, Anwar Islam. (2017). Bangladesh policy on prevention and control of non-communicable diseases: a policy analysis. BMC Public Health, 17(1), 582[10.1186/s12889-017-4494-2]

3.Tahmina Begum, Shaan Muberra Khan, Bridgit Adamou, Jannatul Ferdous, Muhammad Masud Parvez, Mohammad Saiful Islam, Feroza Akhter Kumkum, Aminur Rahman, Iqbal Anwar. (2020). Perceptions and experiences with district health information system software to collect and utilize health data in Bangladesh: a qualitative exploratory study. BMC Health Services Research, 20(1), 465[10.1186/s12913-020-05322-2]

4.Md. Rakibul Hoque, Md. Fahami Ahsan Mazmum, Yukun Bao. (2014). e-Health in Bangladesh: Current Status, Challenges, and Future Direction. The International Technology Management Review, 4(2), 87[10.2991/itmr.2014.4.2.3]

5.Sana Z. Khan, Zahraa Shahid, Karin Hedstrom, Annika Andersson. (2012). Hopes and Fears in Implementation of Electronic Health Records in Bangladesh. The Electronic Journal of Information Systems in Developing Countries, 54(1), 1–18[10.1002/j.1681-4835.2012.tb00387.x]

6.Shafiqul Hassan, Mohsin Dhali, Fazluz Zaman, Muhammad Tanveer. (2021). Big data and predictive analytics in healthcare in Bangladesh: regulatory challenges. Heliyon, 7(6), e07179[10.1016/j.heliyon.2021.e07179]

7.Shahinul Alam, Shah Mohammad Fahim, Muhammad Abdul Baker Chowdhury, Md. Zakiul Hassan, Golam Azam, Golam Mustafa, Mainul Ahsan, Nooruddin Ahmad. (2018). Prevalence and risk factors of non‐alcoholic fatty liver disease in Bangladesh. JGH Open, 2(2), 39–46[10.1002/jgh3.12044]

8.AbulKalam Azad, MuhammadAbdul Hannan Khan, Valeriade Oliveira Cruz. (2019). Bangladesh’s digital health journey: reflections on a decade of quiet revolution. WHO South-East Asia Journal of Public Health, 8(2), 71[10.4103/2224-3151.264849]

9.Shahinul Alam. (2013). Nonalcoholic steatohepatitis in nonalcoholic fatty liver disease patients of Bangladesh. World Journal of Hepatology, 5(5), 281[10.4254/wjh.v5.i5.281]

10.Sheik Mohammed Shariful Islam, Reshman Tabassum. (2015). Implementation of information and communication technologies for health in Bangladesh. Bulletin of the World Health Organization, 93(11), 806–809[10.2471/blt.15.153684]

11.M Masudur Rahman, Md Golam Kibria, Hasina Begum, Mazhar Haque, Nigar Sultana, Mahfuza Akhter, A H M Rowshon, Faruqe Ahmed, Mahmud Hasan. (2020). Prevalence, risk factors and metabolic profile of the non-obese and obese non-alcoholic fatty liver disease in a rural community of South Asia. BMJ Open Gastroenterology, 7(1), e000535[10.1136/bmjgast-2020-000535]

12.Salimur Rahman, Mohammad Faroque Ahmed, Mohammad Jamshed Alam, Mohammad Izazul Hoque, Chitta Ranjan Debnath. (2013). Distribution of Liver Disease in Bangladesh: A Cross-country Study. Euroasian Journal of Hepato-Gastroenterology, 4(1), 25–30[10.5005/jp-journals-10018-1092]

13.Md. Ariful Islam, Md. Antonin Islam, Md. Amzad Hossain Jacky, Md. Al-Amin, Md. Saef Ullah Miah, Md. Muhidul Islam Khan, Md. Iqbal Hossain. (2023). Distributed Ledger Technology Based Integrated Healthcare Solution for Bangladesh. IEEE Access, 11, 51527–51556[10.1109/access.2023.3279724]

14.Mahnuma Rahman Rinty, Uzzal Kumar Prodhan, Md. Mijanur Rahman. (2021). A prospective interoperable distributed e-Health system with loose coupling in improving healthcare services for developing countries. Array, 13, 100114[10.1016/j.array.2021.100114]

15.Dipika Shankar Bhattacharyya, Goutam Kumar Dutta, Iffat Nowrin, Sohana Shafique, Md. Zahidul Islam, B. M. Riazul Islam, Iqbal Anwar. (2021). Implementing a digital human resources management tool in the government health sector in Bangladesh: a policy content analysis. BMC Health Services Research, 21(1), 1346[10.1186/s12913-021-07304-4]

16.Md Ashraful Alam, Md Refat Uz Zaman Sajib, Fariya Rahman, Saraban Ether, Molly Hanson, Abu Sayeed, Ema Akter, Nowrin Nusrat, Tanjeena Tahrin Islam, Sahar Raza, K M Tanvir, Mohammod Jobayer Chisti, Qazi Sadeq-ur Rahman, Akm Hossain, MA Layek, Asaduz Zaman, Juwel Rana, Syed Moshfiqur Rahman, Shams El Arifeen, Ahmed Ehsanur Rahman, Anisuddin Ahmed. (2024). Implications of Big Data Analytics, AI, Machine Learning, and Deep Learning in the Health Care System of Bangladesh: Scoping Review. Journal of Medical Internet Research, 26, e54710[10.2196/54710]

17.Sudipta Kumer Mukherjee, Daniel J. Olivieri, Sarosh Irfan Madhani, Christopher M. Bonfield, Edith Mbabazi, D. M. Arman, Michael C. Dewan, Sheikh Muhammad Ekramullah. (2022). EMR adoption in Dhaka, Bangladesh: a template to index pediatric central nervous system tumor care and a review of preliminary neuro-oncologic observations. Child s Nervous System, 38(8), 1497–1504[10.1007/s00381-022-05450-6]

18.Shafiqur Rahman, Aminul Islam. (2024). Healthcare Information Systems (HIS): Implementation Challenges in Developing Countries. Bangladesh Journal of Medical Science, 23(2), 314–326[10.3329/bjms.v23i2.72094]

19.Amen Faridoon, M. Tahar Kechadi. (2024). Healthcare Data Governance, Privacy, and Security - A Conceptual Framework. Lecture notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering, 261–271[10.1007/978-3-031-72524-1_19]

20.Mohammad Zahedul Alam, Wang Hu, Aslam Uddin. (2020). DIGITAL TRANSFORMATION IN HEALTHCARE SERVICES SECTOR OF BANGLADESH: CURRENT STATUS, CHALLENGES AND FUTURE DIRECTION. Journal on Innovation and Sustainability RISUS, 11(1), 30–38[10.23925/2179-3565.2020v11i1p30-38]

21.Shahinul Alam. (2017). Past, Present, and Future of Hepatitis B and Fatty Liver in Bangladesh. Gastroenterology & Hepatology Open Access, 6(3)[10.15406/ghoa.2017.06.00197]

22.Eka Wilda Faida, Stefanus Supriyanto, Setya Haksama, Hosizah Markam, Amir Ali. (2022). The Acceptance and Use of Electronic Medical Records in Developing Countries within the Unified Theory of Acceptance and Use of Technology Framework. Open Access Macedonian Journal of Medical Sciences, 10(E), 326–336[10.3889/oamjms.2022.8409]

23.Shah Mohammad Fahim, Muhammad Abdul Baker Chowdhury, Shahinul Alam. (2020). Non-alcoholic fatty liver disease (NAFLD) among underweight adults. Clinical Nutrition ESPEN, 38, 80–85[10.1016/j.clnesp.2020.06.002]

24.Mohammad Kamrul Alam Sikder, Abu Nowshed Chy, Md. Hanif Seddiqui. (2013). Electronic health record system for human disease prediction and healthcare improvement in Bangladesh. , 1–5[10.1109/iciev.2013.6572672]

25.Shafiqur Rahman, Aminul Islam. (2024). Success Factors in the Implementation of Healthcare Information Systems (HIS) among Developing Countries. Bangladesh Journal of Medical Science, 23(4), 957–966[10.3329/bjms.v23i4.76505]

26.Mst. Shikha Khatun, Anikah Hossain, Sumaiya Akter, Md Abu Sayed, Ashraful Islam, M. Ashraful Amin. (2025). Designing HepCare App: Promoting Hepatitis Prevention and Awareness in Bangladesh. Lecture notes in computer science, 300–318[10.1007/978-3-031-93061-4_19]

27.Nuha Najibah, Nahin Fatima, Md Alimuzzaman Farsi, Md Abu Sayed, Ashraful Islam, M. Ashraful Amin, Md. Fazal Karim. (2025). Designing a Mobile App for a National Liver Cancer Registry in Bangladesh. Lecture notes in computer science, 329–346[10.1007/978-3-031-93061-4_21]

28.Jannatul Efte Ekra, Pulak Kanti Palit, Mohammed Mehadi Hassan Chowdhury, Israt Jahan Sourna, Sanzida Islam, Farhana Arefin, Md. Asaduz Zaman, Joyonti Datta, Nafsoon Rahman, Adiba Anjum, Subodh Kumar Sarkar, Ashekul Islam. (2025). Metabolic syndrome components as determinants of NAFLD progression in Bangladesh: a cross-sectional study. Egyptian Liver Journal, 15(1)[10.1186/s43066-025-00457-5]

29.Monzur Morshed Patwary, Naimul Islam. (2025). Identifying Gaps in Mobile Data Collection by Frontline Health Workers in Bangladesh. Annals of Global Health, 91(1), 71[10.5334/aogh.4868]